Dear Colleagues,
The current COVID-19 crisis demands that we all act quickly and decisively to minimise the impact of this highly infectious and novel virus.
While there are already initiatives taking place at the national level, it is important to take a pan- European approach to gathering information about COVID-19. Only by doing so, can we ensure that neurologists, as well as colleagues in other clinical disciplines, have access to the most comprehensive information available.
To achieve this, we would like to collaborate with Bulgarian Society of Neurology to create the EAN Neuro-covid ReGistrY (ENERGY).
In order to best meet the needs of each country, we have developed a simple yet comprehensive questionnaire for the Registry.
We would like to inform you that EAN will open and communicate the possibility to contribute to the Registry to individual sites in its member countries. Sites wishing to provide patient data to the Registry may register their interest quickly and easily online via this link:
https://forms.gle/xBbrwcjRTxvQnuzj7
We are committed to ensuring adherence to all national and local ethical and regulatory requirements. Participating sites are required to obtain all approvals necessary within their region. EAN will provide the protocol to be used for submission to local/institutional committees. Furthermore, EAN will guarantee and maintain state-of-the-art centralised data management of the Registry. Where required, EAN is also willing to provide financial support for data entry.
Further details regarding data sharing and ethical requirements will be elaborated in the Registry protocol.
The EAN Registry might also serve to complement existing local/national COVID-19 registries. We would be eager to collaboration with regards to further data sharing with registries that contain other variables. In this way we can work together to make comprehensive data on COVID-19 available to all our respective stakeholders.
Through collective participation and collaboration, we will be able to provide a vital resource for neurologists and other clinicians and thereby improve care for COVID-19 patients.
We look forward to our continued collaboration and alliance in the fight against the COVID-19 pandemic.
European Academy of Neurology
EAN COVID-19 Registry
